Wednesday, October 20, 2010

Closer to walking

Yesterday we went back to Children's Hospital for Mari's first fitting. They made a cast of her left leg and they are working on a test socket. Her knee is back ordered (sounds funny, huh?) so we will probably not get back there until the first week of November for a trial fitting. The goal is to start physical therapy on the 15th. She is so excited about walking. The prosthetic specialists just loved her. She charmed everyone. She certainly has that way about her. Walking around Children's Hospital really helps you keep things in perspective. We are so blessed. Blessed by Mari's determined spirit. Blessed that she was in such a wonderful place while waiting for us to become a family. Blessed that she can do everything with her right hand. She won't even need a prosthetic for that one. Praise God. Amazing is the word that keeps coming to mind day and day. She just amazes me. I am so blessed to be her Momma. I have so much to learn from her.

Friday, October 15, 2010

My girl is getting too big. Look at her. Doesn't she seem older? Something has changed. I don't like it. I want her to stay little forever. When she turned 5 she didn't really seem 5. Now she seems like 10 all of a sudden. And as you see in the 2nd picture.... she has the attitude sometimes of a 10 year old.  Yesterday she said to me "Mom, you've got to be kidding me. Are you serious?" What??? Where does she get this from? I want my little Izzy Bean to be little, not big : (

And when I told her that I wanted her to stay little. She said, "Mommmm, I have to grow up. This is the way God made me. I just have to get big. You have to deal with it Mom."  She is too much.




Thursday, October 14, 2010

Answered Prayers

Our God is so good. So good. Yesterday we went to the Amputee Clinic at Children's Hospital. They of course : ) fell in love with Marianna. She's quite the charmer. So engaging. So sweet. They loved her determination. That joy that just comes from her.... what's not to love : ) We found out that she will not need surgery on her knee right now. In fact that little area behind her knee will not need to be removed till she's much older (8, 9 or maybe 10) It's not in the way of the prosthetic at this age. We are so grateful for that news. Can you imagine keeping a three year old off of her knees for 6 weeks. No way.  So, next Tuesday she will be fitted for her prosthetic and by Thanksgiving our daughter that is almost 4 that hasn't walked a day in her life will be WALKING. Yes, get the Kleenex because I'm already in tears. Visions of our girl walking just brings tears to my eyes. Our Lord has some amazing things planned for this little one. I can't wait to see what He has in mind.

We will spend about 10 days in the hospital having physical therapy twice a day. That will be a little tough. Izzy can come during the day and go to therapy with us. We can even home school while we're there. They are wonderful about accommodating us.... family and all. Ten days of sleeping at the hospital will not be fun, but a small price to pay though for the results. Mari is so excited. She thought when we went to the ENT she was getting her leg and was so disappointed when she found otherwise. This time she asked the doctor "Are you giving me my leg?" Then she said "I want to run". I can see her doing just that. Not walking, but running right away. Thank you all for praying for us. We appreciate that so much. Much love.

Saturday, October 9, 2010

Tuesday, October 5, 2010

Ok, so… we’re alive over here. And doing well. Just so busy. Even on the days when I don’t leave the house…. I’m still so busy. It’s amazing how much one little person changes the whole dynamic. I know it’s early on. I’m trying not to rush things. 6 months till a new normal. I know. I know : )


It’s just Izzy and I were in such a groove before we left for China and now there’s definitely NO GROOVE YET ! I know it’s coming though. It’s like I can hear the music in the distance and I know we’ll find our rhythm soon. I’ve had glimpses of it. A couple days and we’re getting into the groove of things and the next day the music stops all together. Then a couple more days of moving right along and then we screeeetch to a halt. I have to smile when I think about it because it’s not lost on me as to “why” we have these struggles. I see how the Lord uses these opportunities to stretch me. I'm not always smiling though : ) Just when I think this is all about transitioning Mari into our family I’m reminded gently that “no my dear, this is about you too”. He never misses an opportunity to draw us near to him. So, when I’m in tears because I’ve attempted big girl panties for Mari and it didn’t work out and she’s crying because she’s so upset that she had an accident during the night. I’m upset for her. I’m upset because the pee pee is so much that Piglet is soaked and it’s running off of the plastic mattress cover onto the carpet. I’m kneeling in pee pee trying to console her, trying to console myself. And she’s reaching for me to hold her but I can’t because I’m trying to get the wet clothes off of her. I’m in tears. She’s in tears. And I finally just have to hold her. That’s only thing that I can do to calm her. She’s covered in pee. Soaking wet. Now, I’m covered in pee….. ugh!!! And all I can think is “This is exactly what He does for us. He holds us even when we are filthy and covered in sin.” He holds us. So I held her. As tight as I could. I could feel her body relax as she sunk into my arms. I love the feel of my child in my arms. All stinky... I can't stand the smell of pee pee. Just can't stand it. Don't you love the irony in all of that. Believe me I wasn't smiling, but I held her as close to me as ever. It did give me some peace and the strength I needed to pull it together and go take a bath…..  and ended up having a sweet time in the bath at 6:00 a.m. with my littlest one. Knowing that He's carrying me through these struggles and teaching me all the while.... gives me a lot a peace. Oh, there’s the music again. Ahhhh!!

This is our life lately. Two steps forward, one step back. Still going in the right direction, so I’m grateful. I do miss the rhythm of my former life, but I’m looking forward to the sweet music of my new life.